100-hour channel underway to raise funds for rare disease research 

By Rosalind Russell – An Espanola family has launched a 100-hour appeal to raise $10,000 for research into rare diseases. 

Kelsey and Alex McKechnie’s daughter, Iris Mae, has Pompe (POM-pee) Disease, a rare disease that requires monthly infusions as an enzyme replacement therapy, and is long-term since no cure has been found. 

To mark her 100th infusion, Kelsey says the family is kicking off its second annual fundraiser with a 100-hour challenge online adding for every dollar donated, Espanola Home Hardware will match it to a maximum of $10,000. 

The challenge ends at midnight this Saturday. 

She adds the I am Rare and Aware Skate-A-thon will be held in February 2024 as part of their ongoing initiative to raise money for the Toronto’s Sick Kids Foundation. 

To donate or for more information, visit https://fundraise.sickkidsfoundation.com/imskateathon

Photo: An Espanola family, the McKechnies, is kick starting its second annual event to raise fund for research into rare diseases with a 100-hour challenge. Photo provided

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